Faith, Hope, and Love

Friendship Friday 10/4/13 Seizure Free One Year!

Welcome to Friendship Friday! I’m so glad you came! You are wanted and welcome here!


FF rose button

We have a miraculous and exciting anniversary to celebrate today!
seizure free

This week we spent some time at the hospital lab getting Bethany’s blood drawn. Surprisingly and thankfully, Bethany has always been good about it. This is one procedure that she seems to like! Weird but true fact!

Rebekah has been busy baby sitting her little cutie and enjoying planning and choosing her first courses for her first semester of college beginning in January.

Jeremiah and I have been studying the Bible’s book of Joshua, Oceanography, Ancient Egypt, Greek and Latin words, Saxon math, poetry, Art History/ Apprecitiation, and Squilt Music!

Bethany has not been feeling well this week, probably due to a new seizure medication she began taking to counteract the one that made her gain 50 pounds! It has decreased her appetite, but perhaps a bit too much! She’s hardly eating anything at all now! Neither has she been drinking enough liquids which is dangerous because the medication can cause kidney stones if not enough water is consumed. I also think it’s making her already short aggression fuse even shorter! So annoying!

About ten times last night she kept getting up to use the toilet, then coming back and announcing that she was still waiting for the pee pee to come out. Naturally, I assumed the worst and began worrying that she was developing a kidney stone or blockage of some kind.

I debated and prayed about whether I should wake up Malcolm and take her to the emergency room just in case, but after prayer I reasoned that she would be much more uncomfortable, in pain even if she was really experiencing kidney issues. Of course, I tried asking her several times if she had a tummy ache, but she kept telling me to “stop saying that!” It’s so hard to know how she really feels because she doesn’t have the language to tell us if she doesn’t feel well nor does she feel pain the way most people do.

Soooo….I hyperventilated and had panic attacks all night checking her breathing every five minutes to make sure that she was still alive! I figured that since she was sleeping soundly and snoring away that she was comfortable enough. If she hadn’t peed by morning, I planned to take her to the walk-in clinic to get her bladder checked.

Praise the Lord she did pee this morning and several times all day! Crisis over! We still need to somehow make her drink more though, or we’ll be forced to discontinue this medication!

We are looking forward to having my sister, our sons’ Nate and Jim and Jim’s wife, Jasmine up for the weekend. We’re hoping to have a bonfire on Saturday night!
blood test collage

Well how about you! Now it’s your turn to tell us all about what your week was like?

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I am linking to:
Family Fun Friday #39
The Jenny Evolution1-Minute Bible Love NotesHomegrown Learners

20 Comments

  1. Jessy

    How absolutely wonderful about Bethany’s 1 year!

    Reply
  2. Phyllis at All Things Beautiful

    I know exactly how you feel about the limited language is just enough to make you worry. My Alex has never told me when he is in pain, so I just have to guess and wonder if he is acting strange. It is nerve wrecking for sure. {Hugs}

    Reply
  3. Phyllis at All Things Beautiful

    Oh, I almost forgot CONGRATULATIONS on the one year seizure-free. We just took our Sam off his medication and he seems to be not having any seizures, Our daughter is now 5 years seizure free on her medication, but she is scared to go off them. I can’t blame her, because I am, too. 🙂

    Reply
    1. Sylvia (Post author)

      Congrats to you guys too! I can certainly understand why your daughter would be reluctant to go off her meds!

      Reply
  4. Lisa Ehrman

    Congratulations!!! My son has been off his medication for one year and has remained seizure free, too! I hope and pray you keep reporting great news 🙂

    Reply
    1. Sylvia (Post author)

      Thanks and congrats to you guys too!

      Reply
  5. Lucinda @ Navigating By Joy

    Such good news about a year seizure-free. I really feel for you with the tough, anxious night on the new meds. Sending love and prayers you manage to get Bethany drinking enough to be able to relax on the new regime.
    Have a lovely weekend all of you! Lucinda

    Reply
    1. Sylvia (Post author)

      Thanks for all the love and prayers your sending out! We did have a great weekend!

      Reply
  6. Rebecca

    Congratulations on the year without seizures! I hope that soon you can get Bethany to drink more.

    Reply
    1. Sylvia (Post author)

      She’s doing better this week, thanks!

      Reply
  7. Mary

    So thankful for Bethany being seizure free, and praise God your crisis was averted today! Have a great weekend with your company!

    Reply
    1. Sylvia (Post author)

      Thanks, Mary

      Reply
  8. Betty Jo

    HOORAY! Seizure free is awesome news!
    Thanks for hostessing Friendship Friday (again). Have a great weekend! betty jo

    Reply
  9. Dawn

    What wonderful news. I am so glad you all are experiencing this blessing.
    Blessings, Dawn

    Reply
    1. Sylvia (Post author)

      thanks, Dawn!

      Reply
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  12. Stephanie Allen Crist

    I’m glad your family is seizure free! Yay! Side-effects, though…eek. As bothersome as they are, I’m grateful that they’re still better than the alternative.

    Reply
    1. Sylvia (Post author)

      Thanks Stephanie. I’m realizing that sometimes she has to work through awful side effects for a while and then they subside. I wish it weren’t so!

      Reply
      1. Stephanie Allen Crist

        So do I!

        Reply

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