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This week my husband has been working hard to get the garden all planted. He recruited Jeremiah to help with the yard work.
Rachel made an apple pie!
We’ve been having a rough time with Bethany this week too. She’s been behaving aggressively and at times has hit and kicked us, pulled our hair, and plopped her body down on the floor at Walmart, a gas station and outside in our yard! It’s been difficult to put it mildly. She has been on a new medication that’s supposed to help with that plus anxiety and OCD. The problem is that it can take up to two months to work.
Although I am not quite ready yet to do this, my husband and I have been discussing possibly sending Bethany to school. There is a brand new state of the art school for children with autism about 25 miles from us. There she could get OT, PT, Speech, art therapy and music therapy. The school uses applied behavior analysis which is very effective in extinguishing undesirable behaviors. They even have a medical clinic on site which would give me peace of mind if she had seizures there!
It’s not something that I really want to think about but we really do need to think about Bethany’s future even if it is unlikely that she’ll out live us. It could happen and we have to have a plan in place. If we died or were unable to care for her ourselves anymore she could transition to their residential school. If any of our other children want to take her in that would be the ideal situation but we don’t want them to feel obligated. She is an extremely difficult person to live with, after all! So we are formulating a 3 year plan. We’d like to have this house ready to sell, move closer to the school, and enroll her in the day school program within three years! Of course this can only happen if she is still not having many seizures by then!