Welcome to Friendship Friday! Please feel free to share what ever is on your “G” rated mind!
Our week has been pretty good one I suppose, despite dealing with some major behavior issues on Saturday night and then after a nice, calm and happy Sunday afternoon another outburst again on Sunday night.
Both nights Bethany had violent outbursts for about two hours after being told that she needed to take a shower. I’m talking hitting, shoving, and destroying the living room and bedroom. I did not see it coming because as you can see she was very happy all day Saturday and Sunday coloring and hunting for eggs.
On Easter Sunday our son, Josiah and his girlfriend, Katie joined us for dinner. Josiah hid the eggs for Bethany and all the kids jumped on the trampoline just like when they were little!
A conversation with Bethany
Easter Egg Hunt
Easter Egg Hunt Pt. 2
Tattoos and Trampolines
Thursday we headed out to Bethany’s long awaited for neuro-psych evaluation. I was strongly urged to get Bethany in to see this doctor by the leader of our local Brain Injury Association who assured me that it would be the best thing we ever did for her. I had high hopes that we might really get some help this time!
After driving for almost two hours it became obvious that Bethany was probably going to give us a hard time getting out of the car. But to our delight and great relief her mood changed drastically for the better when she heard a church’s clock chime just like our Grandfather Clock does at home does! When it played some hymns as well she was thrilled!
Bethany behaved very well after that, even while sitting for a half an hour in the waiting room. When we finally saw the doctor he asked me what we were there for! I was dumbfounded! I told him that the Brain Injury Association had recommended we see him and that I assumed he would be evaluating Bethany’s level of functioning and behavior issues. He asked if she had any services. Of course I said yes and then he proceeded to inform me that he only evaluates adults with brain injuries who need justification to get services and that was the end of that!
I cannot tell you how disappointed I was yet again! I was so annoyed I could have spit, but I pretended to be very interested in what he had to say instead. I wasn’t really mad at the doctor. In fact, he was really quite nice, but I was really ticked off at that Brain Injury Association Lady for constantly bugging me over and over to get this wonderful evaluation done which would be the answer to all our problems!
I just love how everyone always knows exactly what we should do except they don’t! We got our hopes up once again only to have them dashed to pieces once again! Well The doctor did give us the names of two more doctors that specialize in helping kids just like Bethany- except only kids just like Bethany up to age eleven! He thinks they may be able to direct us to even more doctors who treat kids Bethany’s age!
I’m debating if I really want to waste any more time or money pursuing these new leads only to probably get now help at all. I hate getting Bethany all agitated and aggravated for these appointments for no reason. It feels even stronger now like we are on our own and destined to be on our own for the remainder of our days!
There were some bright moments to redeem the day though. We picked up Rachel and we walked around our favorite grocery store, Wegmans and got some great vegetarian entrees for dinner there!
Later after we got home, Rebekah gave us tickets to go to SUNY Oneonta’s production of Carousel which our dear friend, Micaelina was performing in. (This is the same Micaelina that you see on my side bar!) Rebekah also offered to babysit! To prove that we actually went somewhere by ourselves I’ve included some photos of our evening out!
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