Welcome to this week’s Special Needs and Homeschooling Blog LinkUp! I’m so glad you’re here! This is THE place for families affected by special needs and/or homeschoolers to share, support, and encourage each other in a friendly, safe, and non-judgmental atmosphere!
We have had an exhausting week with Bethany’s emotions and behavior having lots of ups and downs every single day. One minute she seems to be superdeduperly happy and the next minute she is grabbing and pinching my arm and demanding yet one more thing for me to do for her.
I am 99.9% certain that the seizures are worse at the same time every month and her irrationally obnoxious behavior also occurs right around that time too. I am sure they are all inter-related. It’s a vicious cycle! My theory is that her hormones are causing the seizure clusters and the seizure clusters are causing the horrendous behavior.
But what to do about it?? Not really sure other than helping her to identify how she’s feeling and help her learn more appropriate ways of managing her feelings.
I have talked to the behavior specialist about our concerns with the behavior chart and that we no longer wish to use it. She understood and has promised to do some research and come up with an emotions/feelings plan instead.
Will it help?? Who Knows?? I will always keep trying to find help for Bethany, but I’m not really sure if I have any high hopes left any more.
I so desperately want her to gain some control over her aggression. My greatest fear right now is that her behavior will become so violent and obnoxious that no one will want to take care of her or even be around her when I’m dead and gone and that she’ll just waste away in some residential facility all alone for the remainder of her life.
Not a pretty picture and the subject of my extreme anxiety over the situation.
But….in between our bouts of anger and aggression we have had lots of precious, little moments to cherish and celebrate!!
That’s my new philosophy… I am striving and admittedly sometimes struggling hard to stop dwelling on the unpleasant and negative aspects of Bethany’s disabilities and trying to focus on all the joys, triumphs, and precious moments both big and small that come with being Bethany’s mom. I also want to celebrate my other children and grandchildren’s lives too!
(Once again, please excuse the identical thumbnails.)
A Productive Saturday and Some Aggression on Sunday
An Aggressive Day With a Happy Ending
Feelings and Spelling Words
Please check out my post, April is Autism Awareness Month. In this post I mention how I noticed that many of the websites meant to support families affected by autism mainly emphasize how much of a burden children with autism are placing on their parents and society. They paint a pretty dismal and depressing picture really. So in keeping with my new positive attitude and despite my less than positive opening statements above, I try to paint a more positive and joyful picture of what life is like for many families affected by autism.
In my post, Fun Ideas to Teach Sight Words to Students With Autism, I showcase some of the learning aids that I made for Bethany and suggest some commercial products as well!
Fun Ideas to Teach Sight Words To Students With Autism
I’m sharing at: