Special Needs and Homeschooling Blog LinkUp

special needs and homeschooling blog linkup

special needs and homeschooling blog lomkup

Welcome to this week’s Special Needs and Homeschooling Blog LinkUp! I’m so glad you’re here! This is THE place for families affected by special needs and/or homeschoolers to share, support, and encourage each other in a friendly, safe, and non-judgmental atmosphere!

This linkup opens every Friday at 5:00 a.m. and closes every Monday at 1:00 a.m. US Eastern time!
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We have had an exhausting week with Bethany’s emotions and behavior having lots of ups and downs every single day. One minute she seems to be superdeduperly happy and the next minute she is grabbing and pinching my arm and demanding yet one more thing for me to do for her.

I am 99.9% certain that the seizures are worse at the same time every month and her irrationally obnoxious behavior also occurs right around that time too.  I am sure they are all inter-related. It’s a vicious cycle! My theory is that her hormones are causing the seizure clusters and the seizure clusters are causing the horrendous behavior.

But what to do about it?? Not really sure other than helping her to identify how she’s feeling and help her learn more appropriate ways of managing her feelings.

I have talked to the behavior specialist about our concerns with the behavior chart and that we no longer wish to use it. She understood and has promised to do some research and come up with an emotions/feelings plan instead.

Will it help?? Who Knows?? I will always keep trying to find help for Bethany, but I’m not really sure if I have any high hopes left any more.

I so desperately want her to gain some control over her aggression. My greatest fear right now is that her behavior will become so violent and obnoxious that no one will want to take care of her or even be around her when I’m dead and gone and that she’ll just waste away in some residential facility all alone for the remainder of her life.

Not a pretty picture and the subject of my extreme anxiety over the situation.

But….in between our bouts of anger and aggression we have had lots of precious, little moments to cherish and celebrate!!

That’s my new philosophy… I am striving and admittedly sometimes struggling hard to stop dwelling on the unpleasant and negative aspects of Bethany’s disabilities and trying to focus on all the joys, triumphs, and precious moments both big and small that come with being Bethany’s mom. I also want to celebrate my other children and grandchildren’s lives too!

(Once again, please excuse the identical thumbnails.)
A Productive Saturday and Some Aggression on Sunday 

An Aggressive Day With a Happy Ending

Feelings and Spelling Words

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autism awareness

Please check out my post, April is Autism Awareness Month. In this post I mention how I noticed that many of the websites meant to support families affected by autism mainly emphasize how much of a burden children with autism are placing on their parents and society. They paint a pretty dismal and depressing picture really. So in keeping with my new positive attitude and despite my less than positive opening statements above, I try to paint a more positive and joyful picture of what life is like for many families affected by autism.

In my post, Fun Ideas to Teach Sight Words to Students With Autism, I showcase some of the learning aids that I made for Bethany and suggest some commercial products as well!
sight word learning aids

Fun Ideas to Teach Sight Words To Students With Autism

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I’m sharing at:

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Now it’s your turn!! I hope you all had a joyous week!

8 Replies to “Special Needs and Homeschooling Blog LinkUp

  1. I’m so sorry that you have had a difficult week with Bethany. I can’t even begin to imagine what you go through. But I know that focusing on all the moments of joy, whether big or small, will help you be able to go on. I’m praying for you and trust that next week will be a better week for you.

  2. Such a wonderful plan, to focus on the happy moments with Bethany. Attitude really does make a difference in our lives. I hope this week goes much better for you all. Happy Easter!

  3. I’m glad the behavior specialist is willing to look for some other options. I like how you are focusing on appreciating the joys in your life. Praying that you are able to help Bethany express her feelings and control her aggression. Enjoy your weekend!

    1. Sometimes I let the anxiety overwhelm me. You’re right there isn’t much to do about it except pray, plan, and try to keep a positive attitude. Of course having friends like you praying helps a lot too!

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