We are celebrating 14 years of Bethany being a brain tumor survivor today!
Fourteen years ago on November 2, 2000 Bethany had surgery to remove a very large tumor from her very tiny two year old cerebellum.
Today We are rejoicing and thanking God that she has been cancer free since that awful day so long ago!
Of course most of you know that the surgery saved her life. But it also caused her to have a massive stroke and a brain injury, both of which left her multiply disabled.
She has been officially labeled as having autism, a brain injury, and intractable epilepsy. She also displays bi-polar(ish) symptoms and occasionally has aggressive and violent outbursts.
Bethany has suffered for most of her short sixteen years. Her journey has lead her down a rough and painful road.
Yet with every setback, she has come right back up fighting for and striving to achieve a happy and fulfilled life.
Bethany is one tough cookie.
She is the bravest person I know.
She is my hero.
She is also a survivor.
She is my little brain cancer survivor.
I am so ecstatically happy to say that today she has been well enough to begin enjoying her life a little!
Some not so well known facts about childhood brain tumors
In just one day in America:
- 11 families will learn their child has a brain or spinal cord tumor.
- A mother may grieve that her instincts about her child’s health were right.
- A father may allow himself to cry, but only alone in the shower.
- 3 families will mourn the loss of their child to a brain or spinal cord tumor.
- Friends, family and community will try to make sense of an untimely death and the unfulfilled promise of a life.
- 6 families will transition to survivorship.
- A mother may be too exhausted from providing constant care to her child to simply pay the bills.
- A father may again adapt his day, family and life to a new definition of normal, unlike any he had previously envisioned.
- A survivor on the brink of adulthood may wonder if he’ll ever date, marry or have a family. (source: cbtf.org)
- Or like Bethany, a survivor’s life may be changed forever by permanent debilitating disabilities.
For more information about childhood brain tumors and to learn how you can help, please visit The Children’s Brain Tumor Foundation!
If you wish, you can read more about her horrendous and life threatening experiences with brain surgery complications at Bethany’s Diagnosis.
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