My Autistic Brain Tumor Survivor

My Little Brain Tumor Survivor

We are celebrating 14 years of Bethany being a brain tumor survivor today!

Fourteen years ago on November 2, 2000 Bethany had surgery to remove a very large tumor from her very tiny two year old cerebellum.

Today We are rejoicing and thanking God that she has been cancer free since that awful day so long ago!

Of course most of you know that the surgery saved her life. But it also caused her to have a massive stroke and a brain injury, both of which left her multiply disabled.

She has been officially labeled as having autism, a brain injury, and intractable epilepsy. She also displays bi-polar(ish) symptoms and occasionally has aggressive and violent outbursts.

Bethany has suffered for most of her short sixteen years. Her journey has lead her down a rough and painful road.

Yet with every setback, she has come right back up fighting for and striving to achieve a happy and fulfilled life.

Bethany is one tough cookie.

She is the bravest person I know.

She is my hero.

She is also a survivor.

She is my little brain cancer survivor.

I am so ecstatically happy to say that today she has been well enough to begin enjoying her life a little!

Let’s pray that her dark days are over and that the rest of her life will be filled with fun, love, and happiness!
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Some not so well known facts about childhood brain tumors

In just one day in America:

  • 11 families will learn their child has a brain or spinal cord tumor.
  • A mother may grieve that her instincts about her child’s health were right.
  • A father may allow himself to cry, but only alone in the shower.
  • 3 families will mourn the loss of their child to a brain or spinal cord tumor.
  • Friends, family and community will try to make sense of an untimely death and the unfulfilled promise of a life.
  • 6 families will transition to survivorship.
  • A mother may be too exhausted from providing constant care to her child to simply pay the bills.
  • A father may again adapt his day, family and life to a new definition of normal, unlike any he had previously envisioned.
  • A survivor on the brink of adulthood may wonder if he’ll ever date, marry or have a family. (source: cbtf.org)
  • Or like Bethany, a survivor’s life may be changed forever by permanent debilitating disabilities.

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For more information about childhood brain tumors and to learn how you can help, please visit The Children’s Brain Tumor Foundation!

If you wish, you can read more about her horrendous and life threatening experiences with brain surgery complications at Bethany’s Diagnosis.

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Of related interest:

Ten Hints on How to Prepare Your Child (and Yourself) for an MRI
I’m thankful Our Bi-Annual MRI is done!

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I’m sharing at:
Inspire Me Monday
Mingle Monday
Mommy Monday
Dream Team Link Share
Thursday Favorite Things
Special Needs Blogger Weekend Linkup

29 Comments

  1. Phyllis at All Things Beautiful

    What a day to celebrate!! She is blessed to have a wonderful momma.

    Reply
  2. K

    What a wonderful day…I’m so glad that it’s one that you can celebrate!! Thank you for writing about Bethany’s life; I am so thankful to have “met” you and your family through your blog.

    My 21-year-old cousin is also a brain cancer survivor — she had medulloblastoma, and it was a difficult and painful journey, but it feels so good to be able to say that she made it.

    Thinking of you and your sweet Bethany today! Enjoy this beautiful day to the fullest.

    Reply
    1. Sylvia (Post author)

      Thanks for the well wishes and kind words, K. I’m glad your cousin is a survivor also!

      Reply
  3. Victoria

    Yayyy! Congratulations on this monumental occasion! What a great day to celebrate!

    Reply
    1. Sylvia (Post author)

      Thanks Victoria!

      Reply
  4. Tiffany

    Such a beautiful day to celebrate God’s mercy and fullness in times of trials. Praying the Lore continues to guide you in this time of celebration! Blessings, Tiffany

    Reply
    1. Sylvia (Post author)

      Thanks Tiffany. We can certainly want and need all the guidance from the Lord that we can get!

      Reply
  5. Camille Griffiths

    That is so wonderful! Congrats on 14 years, and I’m sooo happy to hear she is doing well. I know it has something to do with you staying so positive and supportive! You are inspiring. 🙂

    Reply
    1. Sylvia (Post author)

      Thanks Camille! You are so sweet!

      Reply
  6. Mary

    What a day to celebrate! Bethany has had her share of struggles, but she has had such support from her family.

    Reply
    1. Sylvia (Post author)

      Thanks for your well wishes, Mary! I appreciate that!

      Reply
  7. Kristi Campbell

    YAY! Happy happy day! Celebrate today and always! Sending love and prayers to Bethany and your family for her continued success and happy, joyful days ahead!

    Reply
    1. Sylvia (Post author)

      Thanks so much, Kristi! We’ll take all the love and prayers we can get!

      Reply
  8. Kerith Stull

    Congratulations to Bethany and your whole family! What a huge impact you’ve surely had on others and created so much awareness, too! Keep on your mission!

    Reply
    1. Sylvia (Post author)

      Thanks Kerith! I’ll be over later to share some love!

      Reply
  9. Tracy FELIX

    Yea! What a great day! So happy for you guys!

    Reply
    1. Sylvia (Post author)

      Thanks Tracy!

      Reply
  10. Beth

    What a wonderful celebration…for all of you!! You are living an incredible life, thank you for sharing it and Bethany! I pray that she has many wonderful happy years to celebrate!!!!

    Reply
    1. Sylvia (Post author)

      Thank you so much, Beth!

      Reply
  11. Lisa

    Congrats! What a milestone!

    Reply
    1. Sylvia (Post author)

      Thanks Lisa!

      Reply
  12. Katherines Corner

    A wonderful celebration post my friend. God bless. xo P.S. thank you for sharing at the Thursday hop

    Reply
  13. Jolene Philo

    Happy anniversary to Bethany! Thank you for sharing her story with DifferentDream.com readers via the Tuesday link up.

    Reply
    1. Sylvia (Post author)

      Thanks, Jolene!

      Reply
  14. Jenni

    Incredible milestone to celebrate!

    Reply
  15. Sandy

    What an amazing thing to celebrate! Here’s to a lifetime of better days ahead.

    Reply
    1. Sylvia (Post author)

      Thank you so much Sandy!

      Reply
  16. karissa

    That’s wonderful that she’s been Cancer free for so long! Thanks for linking up and sharing on my blog for Motivational Monday. I hope you’ll link up again.

    Reply
    1. Sylvia (Post author)

      Thanks Karissa!

      Reply

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