Having a chronic illness and disability is very isolating and lonely.
Being the disabled mother of a daughter with a chronic illness and disability is isolating and lonely for me as well.
It’s also heartbreaking to have to stand by helplessly watching while my daughter suffers.
Spending the majority of your life stuck at home is not only isolating and lonely, it’s also very tedious, wearisome, and boring, as well.
Much of the time we can’t even go outside on a beautiful, warm, sunny, day because my daughter’s chronic illness and disability don’t allow for it.
When It became apparent many years ago that my daughter, Bethany would never fully recover from her brain tumor ordeal, all our support and friendships slowly dwindled away.
Friends got tired of our neediness.
I think maybe they were afraid we’d be needy and constantly asking for help forever.
They got tired of my frequent need to talk about Bethany’s illness.
Basically, people just got sick and tired of Bethany being sick and disabled.
That’s when I started blogging and vlogging.
Now, I can continue fulfilling my constant need to “talk” about all the mundane and monotonous little details of life with a disabled and chronically ill daughter, without boring anyone who doesn’t want to know.
If anyone truly wants to know about how we’re doing they can read my blog or visit my You Tube Channel.
If they don’t care to hear about it, well then they don’t have to, but it’s “out there” for those that do care and I can go right on “talking”, even if all I’m really doing is “talking” to myself!
It’s very therapeutic.
Through blogging and vlogging I’ve been able to develop my own little community of online friends.
We support each other.
Blogging has made me feel a little less lonely, isolated, and all alone in the world!
If chronic illness and disability are a part of your life in some way, I invite you to visit and join our great big, happy YouTube family, where our goal is to do our darndest to take all our crappy situations and somehow turn them into a happy life!
You’re invited even if you aren’t affected by any disabilities or chronic illnesses!
Visit my You Tube Channel and subscribe!
You can view our channel trailer video below!
Chronic Illness Resources
5 Ways to Help During a Medical Crisis
Ten Steps for Coping With a Chronic Condition
Tips for Coping With Chronic Illness
When Your child is Diagnosed With a Chronic illness: How to Cope
On a more personal note, I recommend: Just Mildly Medicated, the blog of a 30 something Military wife and stay at home mother of four kids and a goldendoodle pup. She happens to also have a chronic illness, thin filter and deeply rooted need to over share. There is always a story brewing.