Christmas 2012

*A version of this post was first published on 12/28/12. Please join us for Christmas 2012!! We all had such a great time visiting, feasting, munching on snacks, exchanging gifts and having fun together! One of the gifts I made for my adult sons this year was alcohol infused gummy bears and I must say, they […]

Medication, Christmas Trees, Marbles, Toilets, and Chocolate

Take a stroll down Memory Lane with us and see what life was like for my special needs family back in December 2012! At the time I originally wrote this post, Bethany had been having 10-50 tonic clonic (grand Mal) seizures every week for 12 years! She had once again been admitted to Albany Medical […]

Anatomy of the Brain

A Basic Anatomy of the Brain

Brain tumors can be found in various parts of the brain. Bethany’s was in her cerebellum. After her brain surgery, she experienced drastic behavior changes. In order to better understand the behavior and personality changes I was noticing, I began researching the brain and how it functions. I thought my findings might be beneficial for others also. So, […]

Let’s Get a New “R” Word Going Around!

I’ve been reading a lot lately about celebrities and politicians using the “R” word. The “R” word being Retard or Retarded. Two simple, yet devastating words that I’m ashamed to admit I’ve actually  been guilty of saying, myself. (This post contains affiliate links)   I’m not proud to admit it, but long ago in another […]

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Conversations with an Autistic Brain Tumor Survivor

Dad came home from work one night and asked Bethany what she had done that day. Her answer?  “A really big poop.  Big like my big Jesus”! I added to the conversation by informing Dad that she had also worked on math. Dad asked Bethany who her teacher was and she pointed to me and […]

Finding Hope in all this Hopelessness

*A version of this post was originally published on 9/28/12. Our battle with Bethany’s seizure disorder often seems hopeless. My husband and I are literally helpless bystanders in her battle. Somehow we’ve managed to hang onto a little hope throughout our ordeal. I’d like to tell you how. When Bethany has a seizure, other than administering rescue […]

5 Things NOT to Say to the Mother of a Child With a Life Threatening Illness!

*Please note: A version of this post was originally published on October 7, 2014. Ever since Bethany was diagnosed with a very large brain tumor I’ve been the recipient of much unwanted “medical” and spiritual advice. Bethany has been cancer free for sixteen years now, but because she became permanently disabled as a result of her […]

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Bethany’s Happy 18th Birthday Party: Featuring Barney!

Some of you may remember back in July that we were very disappointed when Bethany’s dream was not delivered by Barney, as had been promised! So to make up for that and to make Bethany’s milestone 18th birthday party special for her, I began dreaming about inviting Barney to it! But there was just a […]