Christmas 2012

*A version of this post was first published on 12/28/12. Please join us for Christmas 2012!! We all had such a great time visiting, feasting, munching on snacks, exchanging gifts and having fun together! One of the gifts I made for my adult sons this year was alcohol infused gummy bears and I must say, they […]

Medication, Christmas Trees, Marbles, Toilets, and Chocolate

Take a stroll down Memory Lane with us and see what life was like for my special needs family back in December 2012! At the time I originally wrote this post, Bethany had been having 10-50 tonic clonic (grand Mal) seizures every week for 12 years! She had once again been admitted to Albany Medical […]

Let’s Get a New “R” Word Going Around!

I’ve been reading a lot lately about celebrities and politicians using the “R” word. The “R” word being Retard or Retarded. Two simple, yet devastating words that I’m ashamed to admit I’ve actually  been guilty of saying, myself. (This post contains affiliate links)   I’m not proud to admit it, but long ago in another […]

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Bethany Goes to The Pumpkin Patch

(This post was originally published on 10/12/12 and contains affiliate links.) It was a warm, gorgeous, sunny day and my husband, Malcolm had the day off. Bethany was in a happy mood, so we decided to risk disaster and drive an hour through the colorful countryside and some quaint little villages to pay a visit […]

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Conversations with an Autistic Brain Tumor Survivor

Dad came home from work one night and asked Bethany what she had done that day. Her answer?  “A really big poop.  Big like my big Jesus”! I added to the conversation by informing Dad that she had also worked on math. Dad asked Bethany who her teacher was and she pointed to me and […]

Finding Hope in all this Hopelessness

*A version of this post was originally published on 9/28/12. Our battle with Bethany’s seizure disorder often seems hopeless. My husband and I are literally helpless bystanders in her battle. Somehow we’ve managed to hang onto a little hope throughout our ordeal. I’d like to tell you how. When Bethany has a seizure, other than administering rescue […]

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Bethany’s Quest for Medical Marijuana is Finally Over!

I’ve said it before, but I’m gonna say it again just one last time!! The journey to getting our daughter, Bethany, access to medical marijuana has been a long and arduous one! When we first started out, it wasn’t even legal for medical use yet, where we live! So we spent a couple of years […]

Birthday Surprises and 10 Facts About Epilepsy!

Happy Friday everyone! Looks like we got even more snow last night! Hope you have plans for a great weekend! Jeremiah doesn’t know it yet, but he is having a family birthday party tomorrow!! We are planning a surprise 15th birthday for him and just like last year, he’s being difficult, again!! I say that […]

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Special Needs Teen Gets Approved for Medical Marijuana!

Breaking News!! Special needs teen gets approved to use medical marijuana to treat seizure disorder! Yesterday, my special needs daughter, Bethany had a Neurology appointment. Thinking her neurologist might suggest prescribing her medical marijuana was the last thing on my husband’s or my mind! So, saying we were shocked when he straight up did just […]