My Autistic Brain Tumor Survivor

We are so Sick of Being Sick and Incapacitated!

sick of being sick 2

About three weeks ago, Rachel brought home some runny nose and cough germs from the pre-school where she works and every last one of us got sick!

It was annoying, but we got over it.

Then a week ago Friday, my spinal stenosis symptoms finally got the best of me and I asked my husband to drive me to the emergency room.

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sick of being sick

I’ve been able to put up with the aches and pains of this condition without much intervention for years, now.

But unfortunately, for some unexplained reason, last Friday I began feeling excruciating pain in my left leg.

It was more than I could handle on my own!

It felt like knives were cutting through my thigh and my knee threatened to give out whenever I tried to walk.

When not walking, the aching was excruciating.

It hurt to sit, stand, or lie down on my back, tummy or sides.

I was miserable, so I made the decision to go to the emergency room to ask for some pain relief.

They took some x-rays and found much more arthritis than was there before, and thankfully,  no injuries.

They gave me a shot of some kind of pain relief which helped immensely and didn’t make me feel out of it!

Then they sent me back home with a prescription for hydrocodone and instructions to see my regular doctor.

I had actually already scheduled an appointment with my regular doctor, but I just couldn’t wait that long for pain relief.

Now I’m just waiting to go to the appointment to see what my options are.

In the meantime, I can barely get comfortable enough to sleep without the pain medication.

Sitting hurts.

Walking is exhausting and painful.

Getting in and out of the car is painful and driving is impossible.

Last Sunday night,  I didn’t like the way Malcolm’s cough was sounding and urged him to make his own trip to the emergency room.

He was diagnosed with bacterial bronchitis and was out of work for a week.

Then to top it all off,  few days ago, Bethany and I started coughing again and our noses are running.

Bethany has rubbed her nose and upper lip raw.

Bethany has also been grouchy and unrealistically obsessing about finding caterpillars to the point of worrying me.

I’ve been terrified that she might try to go outside when we’re home alone and I’m in the bathroom, so Malcolm installed a new lock on the door that can only be opened with a key.

But lest we be all doom and gloom, on a more happier note… we have not seen any seizure activity since about Bethany’s fourth day of taking marijuana.

However, so far, the marijuana does not seem to be improving her mood much, which is a bit of a disappointment!

I’m really hoping she’s just grouchy because she is sick of being sick and sick of mommy being sick and incapacitated!

I’m desperately hoping that as we tweak and play around with Bethany’s marijuana dosage that it will prove to be a mood elevator as well as a seizure suppressor!

I’m sharing at the Mommy Monday Blog Hop
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6 Comments

  1. Phyllis at All Things Beautiful

    I am so sorry that you are having such a difficult time! We have been down with a coughing sickness, too. It has made my neurological pain worse as well, but I am not as bad as you sound. Praying for some relief for you!

    Reply
    1. Sylvia (Post author)

      I’m sorry you guys have been sick, too. Thanks for the prayers. I’ll be praying for you all as well.

      Reply
  2. Joy

    Sorry to hear about the rough time you are all having! I hope you are all feeling better soon! I will certainly keep you all in my prayers.

    Oh, by the way, yesterday I purchased some CBD oil from a local health food store (spray form). I decided to give it a try. I’m supposed to take 2 sprays by mouth twice a day. Not sure if it’s doing anything or not – I’ve only just begun using it yesterday, but so far no change in seizure activity. Will let you know if I see any changes.

    Hope you are all feeling better soon!

    Reply
    1. Sylvia (Post author)

      Thanks Joy. I hope the CBD helps!

      Reply
  3. BW aka Barbara from Boston

    Hi Sylvia, I also have spinal stenosis,fibromyalgia, and other physical problems relating to chronic pain. You could try Vicks vapo rub for pain. It can be used several times a day if needed. My husband and I add small amounts of Cayenne pepper (capsaicin), also powdered ginger and turmeric to ours. It helps a little more. Let it dry in good. It can stain clothes and bedding but is pretty good about washing out. Barbara

    Reply
    1. Sylvia (Post author)

      Thanks for the suggestion, Barbara. This sounds like something I can afford to give a try!

      Reply

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